Yesterday the boys were moved into a twin room at the NICU. They now share a larger room which makes it easier when we visit. Even Zach's artwork got moved. We are really impressed with the NICU staff. All of their doctors, nurses and other experts are amazing not just because they are technical experts that can execute flawless medical care, but because to that they add a level of compassion and caring. Its a great combination and they really do an excellent job. Unfortunately Amy ran a brief fever on Wednesday and so stayed away from them for 2 days in case she was contagious. She is fine now, it was just a short-term thing and she is looking forward to seeing them this morning.
The results of the last test came back and we were told they were "Normal," not to sound crazy but that is not what we were expecting, let me explain. The Hemo Oncologist from Children's Hospital told us earlier that Neuroblastoma excretes a certain protein and they were looking for elevated levels of that protein to confirm that it was Neuroblastoma. Without the elevated levels Amy and I are not sure that we have a clear diagnosis and that it may require more testing. We did a lot of reading on Neuroblastoma and while we don't wish any type of cancer for our child, this one has very good chances for full recovery when found in infants Asher's age. So, more ambiguity than answers at this point. Our follow-up is in a few weeks.
Both Asher and Hudson are growing stronger and increasing their bottle feedings. Asher is up to 6 full per day and gaining weight (target is 8 full feedings per day over two days with weight gain). Hudson is up to 5 partial feedings. He finishes a portion of a bottle and then stops and has to be fed the rest through his feeding tube. If they continue at their current rate Asher will come home first while Hudson will need to stay longer.
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